Current Studies

Cardiac Arrest Survivors with Preserved Ejection Fraction Registry (CASPER)

CASPER collects systematic clinical assessments of patients and families within the multicenter Canadian Inherited Heart Rhythm Research Network.

Unexplained Cardiac Arrest patients and family members undergo standardized testing for evidence of primary electrical disease and latent cardiomyopathy along with clinical genetics screening of affected individuals based on an evident or unmasked phenotype.

What began as a local registry of cardiac arrest survivors in 2004 in London, Ontario under the leadership of Dr. Krahn is now a national registry and bio bank of 1000 cases of robust data and bio samples.


Canadian National Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC) Registry

The National ARVC (arrhythmogenic right ventricular cardiomyopathy) registry plans to gather information from 1500 participants with ARVC themselves or their family members from across Canada.

This is a registry to determine the nature of ARVC patients in Canada, and their short-term outcomes.


National Long QT Syndrome (LQTS) Registry

We have established a National LQTS (Long QT Syndrome) Registry with 10 centres across Canada and we estimate identifying over 250 putative patients (with a concomitant 350 family members).

The registry is supported by grants from the Heart and Stroke Foundation of Canada (HSF) and the Canadian Institutes of Health Research (CIHR). Beginning in 2014 the project is well underway to meeting the enrollment goals.


About these Studies

Coordinating Centre:
University of British Columbia / St. Paul’s Hospital

Room 220 - 1033 Davie Street, Vancouver BC, V6E 1M7

Team Lead

Dr. Andrew Krahn MD, FRCPC, FHRS

Project Managers:
Karen Gibbs RN CCRP, Project Coordinator
Brianna Davies, National Coordinator

Contact HiRO Find a Clinic Contribute