Setting the standard for inherited heart rhythm excellence
What do we see ourselves doing in the future?
Working together across Canada with patients, families, communities, clinicians, and researchers to standardize care and create awareness. Through our ongoing research, the HiRO website, and our annual symposiums, we endeavor to improve the quality of life of our patients by alleviating symptoms and ultimately, to succeed in preventing sudden cardiac arrest and death in Canada. The HiRO research team is focusing on helping patients live healthy lives without fear of suffering a life-threatening cardiac event. With patients as part of our research team we are looking at the most effective ways to diagnose inherited heart rhythm conditions (IHRs), treat them, and determine the risk of sudden cardiac arrest or death. Additionally, with this website, we aim to provide a public resource on inherited heart rhythm conditions, a resource centre for patients and families, and toolkits for healthcare professionals as well as researchers.
1. Facilitate collaborative research and engage patients and families in the process
2. Ensure high quality, standardized care across Canada
3. Translate research to the health care system and general public
4. Prevent sudden death from inherited arrhythmia
HiRO Executive Committee
Our HiRO Executive Committee oversees the four working groups.
HiRO Coordinating Center
Our HiRO Coordinating Center supports our four working groups by coordinating meetings and facilitating communication. Our coordinating center manages our HiRO website and social media accounts (@HeartsInRhythm).
HiRO Research Committee
Our HiRO Research Committee oversees the National HiRO Registry. This includes design, recruitment, data collection and study proposal review for the National HiRO Registry. Here you can learn more about the National HiRO registry .
HiRO Annual Symposium Planning Committee
Our Annual Symposium brings together clinical care teams, researchers, patients and families from across Canada. Each year we review our ongoing HiRO initiatives and relevant clinical updates and set our priorities for the coming year. The Planning Committee organizes and facilitates the annual meeting.
HiRO Clinical Care Committee
Our HiRO Clinical Care Committee includes genetic counselors, nurses and patient/family partners. The group works to standardize and improve delivery of care of those affected by inherited heart rhythm and cardiomyopathy conditions across provinces.
HiRO Active Communities Committee
Our HiRO Active Communities Committee includes heart rhythm and sports cardiology specialists, researchers, patient/families and community advocates. Aiming to improve the safety of those at risk of sudden cardiac arrest, members of the committee collaborate with local, provincial and national government agencies and organizations.